Today seems to be going much better.  Yesterday was a rough day with pain and then childrens church was rough dancing around but I made it through.  I slept decently last night.  I have some pain today but not as bad as the last several days.  I'm doing some laundry and trying to get stuff done around the house.

Last nigh Malakhi and I had a long talk that let do him asking me if we could pray to ask Jesus into his heart!  What a blessing!  Lonnie and I prayed with him.  He's only 4 so I don't know if he truly understands but when we asked him why he wanted to pray for that and to explain what he wanted to do he seemed to understand the concept.  I'm praying for him as he grows in the Lord and praying I can be the example the Lord wants me to be to him.

I did a devotional this morning, I tried to understand it but my brain fog is getting to me today.  I know that it was about God's grace.  I think I need to try to read it again in a little bit when the kids are in bed.

Today is an uphill battle with pain and IBS.  It's okay though cause I know my strength is in the LORD.  I just wish I could have the answers as to what is going on.  I know I will soon.  May 25th at the latest.

The remnant...A small remaining quantity of something.

The people God saved from destruction.  He saves us from destruction.  He will come to take us home before He destroys the earth.  Lord thank You for that simple truth.

I know my posts are odd.  It's all okay though.  I just keep trusting the Lord in all I'm going through.  That's why I'm tying this all together.  Even though I don't feel good, I know His hand is upon me and will bring me through.

Well, today the pain hasn't been quite as bad.  It's more dizziness and just feeling out of it.  I still hurt in my shoulders and hip/back but just feel more confused and lost today.  It's hard to describe.  As for my walk with the Lord, I'm really struggling.  I guess I'm too busy worrying about test results.  I think after I turn the burgers, I will read my bible.

Okay, I had my devotion.  Right now all my devotions are on God's grace.  I thank God for His grace and His love.  I am so grateful that when I run away and hide, he seeks me out and he's standing right beside me.  He never leaves me.  He's standing there waiting for me to look up and say, "Daddy, please help."  So here I am Daddy, please help...

I think I'm going to start blogging how I'm feeling and my walk with God.  This blog keeps changing.  Sorry. LOL

Well, today I'm not feeling good at all.  I have a headache.  My shoulders and back hurt bad.  Tylenol barely touched it but oh well.  I'm irritable.  Trying not to get frustrated.  I guess it's time for me to be honest about how I'm feeling instead of hiding it all the time.  I'm hoping this blog will help me keep track of what's going on with my body.

As for my walk with God, I still need to do my devotion today.  I read a friends blog about how she prayed and was close to God that day.  I need to set aside time to pray.  It's hard when I've got the boys running around and begging my attention.  I love them very much.  When they need me I go to them.  When they nap, I try to rest or sleep so I can feel better.  I need to turn that time into prayer and devotion time or try to get up earlier to spend time with God.  Ugh, why do I constantly battle with it?

Well, I guess it's been a while since I posted.  I've had a lot going on.

 Mateo's diagnosis' have changed from Autism, to Sensory Processing Disorder, to Apraxia, to PDD-NOS, and we are still waiting to find out more and if he will qualify for services through the school district.  We have an IEP scheduled for May 9th. 

Malakhi will be starting school in August.  We are trying to get all the paperwork filled out to mail in.  I can't believe how big he is getting so fast.

Lonnie is graduating from MSJC on May 31st!  I'm so proud of him.  He's now playing on the worship team at church for main, youth, and mens.

I am singing with the childrens worship team and loving it.  I waited a while before jumping into ministry because I didn't know where the Lord wanted me.

I went to a new Dr today.  I've been having a lot of pain and fatigue.  My last Dr. told me it's because I have young kids and I couldn't swallow that.  After seeing my new Dr, she said she has young kids and she doesn't feel this way so she is running tests.  She is test to look for autoimmune disorders.  If something shows up they will know how to treat it.  If nothing shows up, it is probably Fibromyalgia and will be able to treat that.  I'm glad to finally be getting some answers.  I have to wait till May 25th for my next appt to go over the results.  I wish it was sooner but it's all good and God is in control! 

Think Before you Judge

Sensory Processing Disorder
Think before you judge

My son Mateo has Sensory Processing Disorder and probable Apraxia.

- If my son gives you a hug but it's so tight that it hurts, he's not trying to hurt you, he doesn't know his strength.
- If my son is screaming and crying in a play area it's because he can't figure out how to get down. He's not a spoiled brat.
- If my son sticks his tongue out at you and then yells "I DID IT!" It's because he just figured out how to do it.
- If my son doesn't clap when he's supposed to it's not because he doesn't want to but because his brain isn't telling him how to do it.
- If my son is crying during song and dance time it is because he can't figure out how to do the same moves others are doing.
- If my son doesn't look at you when you are talking to him, it's because he processes things in a different way.
- If my son is upset in a restaurant it's maybe because it's too loud or the food isn't right.
- If my son uses his fingers to eat it's because the spoon won't work with his hand at the moment.
- If my son is banging his head on the wall or ground, or is pinching or hitting himself it's not a temper tantrum. He's trying to find his body.

Just because someone is different, looks like a monster, screams loud, or just doesn't seem normal, doesn't mean they don't have feelings.

Please think before you judge...

7/17/11

Wow, I have not posted in 6 1/2 months. That's crazy! Things are very interesting around here.

I have taken Mateo for a neurological exam and he was diagnosed with Autism Spectrum Disorder. Then I took him for another IRC eval that he was turned down for because they (who are not doctors) say there is nothing wrong with him other than sensory problems. Then I took him to an Occupational Therapist and they feel he needs therapy. They diagnosed him with Neurologic Neglect Syndrome and poor muscle tone. We requested OT through the insurance and they denied him because it is not "medically needed." The insurance is telling me I need to go through IRC. UGH!!!!!!

I took Mateo back to his Dr. for another reason but she feels he needs therapy now and doesn't want to wait till he is 3 for the school district. She sent a letter to IRC and they actually called me that same afternoon. If I would have called myself, it would have taken at least a month for them to call me back. Now, I have to wait another week or so for them to call me back to make an actual appointment. If we get turned down again, I am going to appeal the decision. This is getting very frustrating.

I don't know if Mateo has "Autism" but he has been diagnosed as being on the spectrum and I have been told by 3 medical professionals that he has delays and needs therapies now. I'm so sick of getting the run around. I love my little boy and I just want to see him improve.

As for Khi, I have to take him to a geneticist because he has a small head, crooked pinkies, delayed tooth eruption, and delayed bone growth. I don't know yet when that appointment will take place.

As for me, I have had a lot of health problems with my stomach pain and back pain and joint pain and...yeah the list goes on. We are getting insurance for me hopefully. I'm hoping we will find this out soon. Then I can go to the dr. and find out what is going on.

So anyway, there is an update. A lot has been going on but God is still on the Throne and I just need to trust in him.